{"id":5180,"date":"2021-02-18T11:27:09","date_gmt":"2021-02-18T02:27:09","guid":{"rendered":"https:\/\/www.med.osaka-u.ac.jp\/pub\/eth\/site-wp\/?p=5180"},"modified":"2024-02-13T11:31:27","modified_gmt":"2024-02-13T02:31:27","slug":"20210217","status":"publish","type":"post","link":"https:\/\/www.med.osaka-u.ac.jp\/pub\/eth\/news\/20210217\/","title":{"rendered":"\u5927\u5b66\u9662\u751f\u306e\u6ff1\u5ddd\u83dc\u685c\u3001\u53e4\u7d50\u6566\u58eb\u3089\u306b\u3088\u308b\u8ad6\u6587\u304c\u516c\u958b\u3055\u308c\u307e\u3057\u305f\u3002"},"content":{"rendered":"

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\n\u3053\u308c\u307e\u3067\u3001\u82f1\u7c73\u3092\u4e2d\u5fc3\u3068\u3057\u3066\u3001\u60a3\u8005\u53c2\u753b\u306e\u5b9f\u8df5\u304c\u5e83\u304c\u3063\u3066\u304d\u307e\u3057\u305f\u3002\u4e00\u65b9\u3001\u65e5\u672c\u3067\u306f\u5b9f\u8df5\u6570\u304c\u975e\u5e38\u306b\u5c11\u306a\u304f\u3001\u60a3\u8005\u53c2\u753b\u3084\u60a3\u8005\u3068\u7814\u7a76\u8005\u306e\u30d1\u30fc\u30c8\u30ca\u30fc\u30b7\u30c3\u30d7\u306e\u69cb\u7bc9\u304c\u53ef\u80fd\u3067\u3042\u308b\u304b\u306f\u660e\u3089\u304b\u3067\u306f\u3042\u308a\u307e\u305b\u3093\u3067\u3057\u305f\u3002\u4eca\u56de\u3001\u52a0\u85e4\u6559\u6388\u3089\u306e\u7814\u7a76\u30b0\u30eb\u30fc\u30d7\u306f\u3001\u300cRUDY JAPAN\u300d\u3068\u547c\u3070\u308c\u308bICT\u3092\u7528\u3044\u3066\u5e0c\u5c11\u96e3\u75c5\u306e\u60a3\u8005\u3055\u3093\u3068\u7814\u7a76\u8005\u304c\u5171\u306b\u533b\u5b66\u7814\u7a76\u3092\u3059\u3059\u3081\u308b\u30d7\u30ed\u30b8\u30a7\u30af\u30c8\uff08\u8a73\u7d30\u306f\u3053\u3061\u3089<\/a>\uff09\u306e\u5b9f\u8df5\u3092\u5206\u6790\u3059\u308b\u3053\u3068\u306b\u3088\u308a\u3001\u65e5\u672c\u306b\u304a\u3051\u308b\u60a3\u8005\u53c2\u753b\u306e\u52b9\u679c\u3068\u8ab2\u984c\u3092\u660e\u3089\u304b\u306b\u3057\u307e\u3057\u305f\u3002<\/p>\n

\u672c\u7814\u7a76\u6210\u679c\u306f\u30012021\u5e742\u67081\u65e5\u306b\u56fd\u969b\u8a8c\u300cResearch Involvement and Engagement\u300d\uff08\u30aa\u30f3\u30e9\u30a4\u30f3\uff09\u306b\u63b2\u8f09\u3055\u308c\u307e\u3057\u305f\u3002<\/p>\n

\u30bf\u30a4\u30c8\u30eb\uff1a\u201cThe practice of active patient involvement in rare disease research using ICT: experiences and lessons from the RUDY JAPAN project\u201d<\/p>\n

\u8457\u8005\u540d\uff1a Nao Hamakawa, Atsushi Kogetsu, Moeko Isono, Chisato Yamasaki, Shirou Manabe, Toshihiro Takeda, Kazumasa Iwamoto, Tomoya Kubota, Joe Barrett, Nathanael Gray, Alison Turner, Harriet Teare, Yukie Imamura, Beverley Anne Yamamoto, Jane Kaye, Michihiro Hide, Masanori P. Takahashi, Yasushi Matsumura, Muhammad Kassim Javaid and Kazuto Kato<\/p>\n

\u8ad6\u6587\u30b5\u30a4\u30c8\u3000https:\/\/doi.org\/10.1186\/s40900-021-00253-6<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

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