{"id":141,"date":"2021-02-01T09:10:00","date_gmt":"2021-02-01T00:10:00","guid":{"rendered":"http:\/\/localhost:8080\/achievement\/achievement-paper-2021-005\/"},"modified":"2026-04-28T09:46:45","modified_gmt":"2026-04-28T00:46:45","slug":"paper-20210201","status":"publish","type":"achievement","link":"https:\/\/www.med.osaka-u.ac.jp\/pub\/hp-info\/achievement\/paper-20210201\/","title":{"rendered":"The practice of active patient involvement in rare disease research using ICT: experiences and lessons from the RUDY JAPAN project."},"content":{"rendered":"<h3>\u3072\u3068\u3053\u3068\u3067\u8a00\u3046\u3068<\/h3>\n<p>\u5e0c\u5c11\u75be\u60a3\u7814\u7a76\u3067\u3001\u60a3\u8005\u3055\u3093\u304c\u4e3b\u4f53\u7684\u306b\u53c2\u52a0\u3067\u304d\u308bICT\u306e\u6d3b\u7528\u7d4c\u9a13\u3092\u6574\u7406\u3057\u305f\u7814\u7a76\u3067\u3059\u3002<\/p>\n<h3>\u306a\u305c\u3053\u306e\u7814\u7a76\u3092\u3057\u305f\u306e\u304b<\/h3>\n<p>\u5e0c\u5c11\u75be\u60a3\u3067\u306f\u60a3\u8005\u6570\u304c\u5c11\u306a\u304f\u3001\u7814\u7a76\u5074\u3060\u3051\u3067\u5fc5\u8981\u60c5\u5831\u3092\u96c6\u3081\u308b\u3053\u3068\u304c\u96e3\u3057\u3044\u3053\u3068\u304c\u3042\u308a\u307e\u3059\u3002<\/p>\n<h3>\u3069\u3046\u8abf\u3079\u305f\u304b<\/h3>\n<p>RUDY JAPAN\u3067\u306e\u60a3\u8005\u53c2\u52a0\u578b\u7814\u7a76\u306e\u904b\u7528\u7d4c\u9a13\u3092\u632f\u308a\u8fd4\u308a\u3001\u5b9f\u8df5\u4e0a\u306e\u5de5\u592b\u3084\u8ab2\u984c\u3092\u307e\u3068\u3081\u307e\u3057\u305f\u3002<\/p>\n<h3>\u4f55\u304c\u308f\u304b\u3063\u305f\u304b<\/h3>\n<p>\u60a3\u8005\u53c2\u52a0\u306f\u7814\u7a76\u306e\u5b9f\u884c\u6027\u3084\u7d99\u7d9a\u6027\u3092\u9ad8\u3081\u3046\u308b\u4e00\u65b9\u3001\u904b\u55b6\u3084\u652f\u63f4\u4f53\u5236\u306e\u6574\u5099\u304c\u91cd\u8981\u3067\u3042\u308b\u3053\u3068\u304c\u793a\u3055\u308c\u307e\u3057\u305f\u3002<\/p>\n<h3>\u306a\u305c\u5927\u4e8b\u306a\u306e\u304b<\/h3>\n<p>\u60a3\u8005\u3055\u3093\u306e\u58f0\u3092\u7814\u7a76\u306b\u53cd\u6620\u3057\u3084\u3059\u304f\u306a\u308a\u3001\u5e0c\u5c11\u75be\u60a3\u9818\u57df\u306e\u7814\u7a76\u63a8\u9032\u306b\u5f79\u7acb\u3061\u307e\u3059\u3002<\/p>\n<h3>\u6b21\u306b\u76ee\u6307\u3059\u3053\u3068<\/h3>\n<p>\u53c2\u52a0\u3057\u3084\u3059\u3044\u4ed5\u7d44\u307f\u3084\u9577\u671f\u7684\u306a\u652f\u63f4\u4f53\u5236\u3092\u3055\u3089\u306b\u6d17\u7df4\u3055\u305b\u308b\u5fc5\u8981\u304c\u3042\u308a\u307e\u3059\u3002<\/p>\n","protected":false},"excerpt":{"rendered":"<p>\u753b\u50cf\u3084\u753b\u50cf\u30ec\u30dd\u30fc\u30c8\u3092\u7d44\u307f\u5408\u308f\u305b\u3001\u898b\u843d\u3068\u3057\u9632\u6b62\u3084\u52b9\u7387\u5316\u306b\u3064\u306a\u3052\u308b\u7814\u7a76<\/p>\n","protected":false},"featured_media":55,"template":"","achievement_type":[20],"achievement_keyword":[11],"fiscal_year":[28],"class_list":["post-141","achievement","type-achievement","status-publish","has-post-thumbnail","hentry","achievement_type-papers","achievement_keyword-11","fiscal_year-28"],"_links":{"self":[{"href":"https:\/\/www.med.osaka-u.ac.jp\/pub\/hp-info\/wp-json\/wp\/v2\/achievement\/141","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.med.osaka-u.ac.jp\/pub\/hp-info\/wp-json\/wp\/v2\/achievement"}],"about":[{"href":"https:\/\/www.med.osaka-u.ac.jp\/pub\/hp-info\/wp-json\/wp\/v2\/types\/achievement"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.med.osaka-u.ac.jp\/pub\/hp-info\/wp-json\/wp\/v2\/media\/55"}],"wp:attachment":[{"href":"https:\/\/www.med.osaka-u.ac.jp\/pub\/hp-info\/wp-json\/wp\/v2\/media?parent=141"}],"wp:term":[{"taxonomy":"achievement_type","embeddable":true,"href":"https:\/\/www.med.osaka-u.ac.jp\/pub\/hp-info\/wp-json\/wp\/v2\/achievement_type?post=141"},{"taxonomy":"achievement_keyword","embeddable":true,"href":"https:\/\/www.med.osaka-u.ac.jp\/pub\/hp-info\/wp-json\/wp\/v2\/achievement_keyword?post=141"},{"taxonomy":"fiscal_year","embeddable":true,"href":"https:\/\/www.med.osaka-u.ac.jp\/pub\/hp-info\/wp-json\/wp\/v2\/fiscal_year?post=141"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}