19th Research Seminar : Life Science, Medicine and Society – USE OF GENETIC DATA BY PRIVATE PARTIES: ADDRESSING THE FOUR MAIN THREATS TO HUMAN RIGHTS
Overview
In recent years, researchers have made considerable progress in the analysis of the human genome. New developments have allowed us to overcome past challenges for a more widespread application of genetic analyses.
These advances point to a brilliant future for medical research and deserve to be pursued. However, it also makes data accessible to a wider range of stakeholders beyond health care providers. This creates a series of human rights issues concerning the potential misuse of genetic data by private parties (i.e., non-state actors). In this talk, I identify and analyse four main threats to human rights by private parties: re-use of genetic data;
involvement of individuals and their relatives in genetic analysis;
discrimination based on genetic data; and equality in databases and genetic groups. I then set out to assess to what extent the existing legal instruments in Europe such as Oviedo Convention can be interpreted as providing an adequate protection of an individual’s human rights against the misuse of genetic data by private parties.
Date and Time: Monday, July 24, 2023, 16:00-17:00, JST
Format: On-site
Venue: Seminar and Conference Room, 7th floor, Kyodo-Kenkyujo, Osaka University (Suita) School of Medicine
Language: English
Target: Osaka University staff and researchers who are interested in the utilization of
medical data
Admission: Free
Registration: Not required
Inquiries: Osaka University Graduate School of Medicine, Department of Social Medicine, Medical Ethics and Public Policy
Phone: 06-6879-3688
